Patient & Physician Resources

Welcome to the Jain Foundation’s section for patients and physicians! We are the only foundation in the world focused specifically on dysferlinopathies, including Limb Girdle Muscular Dystrophy 2B (LGMD2B) and Miyoshi Myopathy (MM). The information provided in this section will help you understand the nature and cause of LGMD2B/Miyoshi Myopathy (collectively called the dysferlinopathies), find physicians knowledgeable in dysferlinopathy, laboratories that offer relevant diagnostic tests, and connect with supportive and helpful communities. Please visit the About Us page for a brief history of the foundation and read a letter from the President: State of the Foundation: A Short Update.

The Jain Foundation needs your help to urge individuals who have been diagnosed with LGMD2B or MM to contact us and join our patient registry. The patient registry is free and we do not raise money from patients.

Click on the links below for helpful and pertinent information.